New Crooked Spine Show episode
If you know someone that has a chronic illness (like long-term COVID effects), finding help is frustrating and usually disappointing. Suzan Jackson is my new advocate to help these people. She has suffered from ME (Myalgic encephalomyelitis) CFS (Chronic Fatigue Syndrome) for 20 years now and Lyme disease for about 15 years. She has learned to live a “new normal”. Suzan has helped guide people and their families in finding help for chronic illness by sharing her story on her blog and videos.
Connect with Suzan—
https://www.suzanjackson.com
https://www.livewithcfs.blogspot.com
https://www.facebook.com/livewithmecfs
https://twitter.com/livewithmecfs
https://www.youtube.com/c/SueJacksonDE/videos
Watch the full episode on YouTube:
Subscribe, Listen to this episode on iTunes:
https://apple.co/2M0zBCs
See our other podcast videos:
http://bit.ly/2AKgyYA
Highlights:
(6:00) Sue’s illness story; what she learned to help herself, to help you.
(12:30) Chronic Fatigue Syndrome (CF) is Sue’s diagnosis. Finding out became her double-edge sword. Why she (and others) are more prone for this condition-like her sons.
(20:30) CF throws off your blood pressure, heart rate and sleep; how medications help.
(26:20) One of the causes of CF is Lime Disease (transmitted via ticks); how it is best diagnosed/treated; why it is missed; long term effects.
(30:30) How Sue gets through her day. I’m surprised what she adds in and eliminates.
(38:15) Sue’s avoids the severe fatigue with CF by mindset and naps.
(40:30) Family/friends support can help or hurt.
(41:20) Exercise: how much help/hurts? Using beta blockers.
(45:50) Sues educational platforms helps you understand the sources of CF (long Covid, SARS, mono, etc.)
(49:30) Sue’s book, “Finding a New Normal” helps emotional coping for long-term health conditions.
(54:30) My takeaway: Sue gives us how to see medical and emotional support to live a “new normal” quality of life.
Podcast: Play in new window | Download
Subscribe: RSS